From the time Lucy was born, until she was two - she was pretty close to “normal.” Then…we started giving her table foods. As a family, we eat healthy…so the foods we fed her were also healthy - we thought.
Come to find out…she was not producing digestive enzymes and most likely had leaky gut syndrome. As a result, we were basically poisoning her AND starving her. Her development from age 2 to age 6 was stagnant. She barely grew physically and didn’t grow intellectually or academically. No one seemed to know what was going on and basically assumed this was just “how Lucy is”…with the exception of Phylis @ Rock Creek Herb & Vitamin Co. She recommended cutting out the usual culprits (for people with autism or other brain related issues) , so we started with corn, wheat, and dairy. There was a stark difference in Lucy’s behavior, bowel movements, sleeping patterns…it obviously made a huge impact on her and from there we began to know that Lucy wasn’t necessarily supposed to hit herself, bite herself, bang her head on walls and floors - this was not “how Lucy is”
When we eliminated nearly everything from her diet and began giving her supplements…she began steadily improving. We eliminated everything but rice, green beans, oranges, apples, and coconut. Even with just those five foods, she had to have a digestive enzyme with every meal for her to digest the food. Doing this kept Lucy stable…it kept us for having to restrain her for 30+ minutes (to keep her from hurting herself)…it kept her comfortable. Comfortable was a big accomplishment, but most certainly was just the beginning of Lucy’s progress.
Since then, we have found an herbal supplement that has begun healing Lucy’s body. She no longer needs digestive enzymes or GABA, or any of the supplements we started her on. She has begun walking around the house, telling us how she feels, feeling remorse and sadness, being affectionate, telling us what she wants (or doesn’t), feeding herself, meeting new people - she is doing all the things she should be doing (but has never done before). She continues to amaze us, as she catches up - at lightning speed.
I have tried repeatedly to catch her doing all these amazing things BUT she is camera shy. Somehow she always knows when I turn the camera on, and whatever amazing thing she was doing - she stops. I managed to catch a few videos for you….however if you really want to see how much she’s changed - come visit!!!
(if you don’t quite remember what she was like, just scroll through the blog and watch some of the old videos - her diagnosis & other info is on the left side of the site)
:) <--- one proud Mama!
Lucy breathing life into my Mother…with a hug
(Mom is battling cancer & common immune deficiency disease…Lucy used to not go to my Mom - now she absolutely adores her)



Gwen says:
BRILLIANT — she is simply BRILLIANT!!!!!!! SO VERY PROUD OF HER & OF YOU FOR FIGURING THIS OUT!
Love you guys sooooo much & hope we can visit in person sometime SOON!
oxooxox Gwen & the gang
July 23rd, 2009 at 2:56 am
Mary C. says:
I am crying even more than I was before…I’ve told you before how much I LOVE seeing updates and especially reading and seeing videos of lucy…it absolutely breaks my heart to see susan also go through this crap…DAMN CANCER…I always tell my students and my own kids ‘hate’ is a bad and powerful word but when it comes to cancer it TOTALLY applies. Amie, my heart is breaking for you and your family…always has, but now I’m ANGRY and really don’t understand. On the bright side it makes me and motivates me to get myself and my family more involved….
July 23rd, 2009 at 3:23 am